What does DKMS do?
DKMS is a donor recruitment centre and registry. Our main function is to recruit blood stem cell donors so that patients who need a (bone marrow) stem cell transplant can find a suitable donor. To be able to help all patients the Registry needs to grow! To achieve this we create awareness and educate donors and also pay for the HLA tissue-typing, which requires laboratory analyses. For these reasons we are dependent on monetary donations and hold numerous fund-raising events throughout the year with DMKS being held on the third Friday of September each year being the largest.
What does the family of the patient need to do?
First and foremost you need to be there for your loved one. If you want to register as a donor, have a general question or one regarding recruiting (bone marrow) blood stem cell donors don’t hesitate to call our Call Centre (Monday – Thursday 08:30 – 16:30 and Friday 08:30 – 14:00) on 0800 12 10 82. Our experienced staff will gladly assist you or point you in the right direction.
How can the patient’s family help DKMS?
We ask you please to encourage friends and family to join DKMS’s stem cell registry by registering as a (bone marrow) blood stem cell donors. Most donors were motivated by someone they knew who required a blood stem cell transplant. They realized that there were others in need and were prepared to help anyone if they did not match the person they knew. The commitment to help anyone is very important, the more registered donors, the better the chance patients have of finding a suitable match. To register as a donor requires 2 test tubes of blood and then if they are a match for someone the process to harvest the blood stem cells is like donating blood for 4-6 hours. No surgery is required! More information on donor recruitment can be found in our Donor Recruitment Information. It is very important that donors read and understand the information in the Donor Recruitment document.
What happens when family members don’t match the patient?
Any family members who have tested privately and specifically for a patient and who unfortunately don’t match the patient can (if they so wish) have their details transferred to a national registry. This does not happen automatically. They have to complete and sign a transfer form which can be obtained from our Call Centre.
Please take note of the following:
- To ensure accuracy of information only DKMS should issue press releases regarding donor recruitment.
- Patients awaiting (bone marrow) blood stem cell transplants and their families should not be directly involved in donor recruitment – It is imperative to give interested parties the contact number of DKMS Call Centre and allow them to handle the recruitment process – 0800 12 10 82.
- Donor information is strictly confidential (as directed by the World Marrow Donor Association – the body that regulates all unrelated stem cell transplantation).
- Searches for donors are only done at the request of a transplant centre and/or specialist physician.
- Patients must liaise with their doctors, for their own donor information.
- Donor confidentiality must be maintained at all times.
- Under no circumstances should anyone be pressurised into joining a bone marrow registry.
- It is very important that all donors are aware that they are registering to help anyone who may need them, and not just the person who motivated them to join initially.
- Committed donors are critical, whether it be for your loved one currently or someone else in the future.
We understand that this is a difficult and very emotional time and most of our staff and volunteers have, in the past, been personally involved themselves and understand the urgency and emotion involved at this time. We have also found over the years, through hard lessons and international best practice, that the procedure that is currently in place is the most effective one to follow in order to get the best possible donors to help your family.