Abu-Taalib and Ayyub's Fight Against a Genetic Disorder
In a heart-breaking battle against Adrenoleukodystrophy (ALD), Abu-Taalib and his younger brother Ayyub face a rare genetic condition with courage and community support. Their journey highlights the urgent need for increased awareness and stem cell donor registration.
Cape Town, August 12, 2024 – Abu-Taalib and his younger brother Ayyub are bravely facing the rare genetic disorder Adrenoleukodystrophy (ALD). Despite the emotional and physical challenges, the family remains hopeful thanks to DKMS's efforts to find a matching stem cell donor. The support from DKMS and the community gives them strength and optimism in their fight against ALD.
Abu-Taalib’s Journey:
Abu-Taalib has always been a lively adventurer with a love for sports and a dream of becoming a lawyer like his late father. “From a young age, he was always looking for exciting experiences,” his mother recalls. However, what seemed like symptoms of ADHD turned out to be early signs of Adrenoleukodystrophy (ALD), a rare genetic condition affecting the brain and spinal cord.
Prior to the Diagnosis:
After a karate practice injury led to a CT scan and MRI, Abu-Taalib was diagnosed with ALD. “The journey has been tough, but we found hope in the possibility of a stem cell transplant,” his mother says. The community’s support has been crucial in their fight.
Ayyub’s Journey:
Since ALD is genetic, they had to test Abu-Taalib’s younger brother, Ayyub, hoping that he could be a stem cell match. The family’s fight intensified when they discovered that Ayyub, also has ALD. “The diagnosis was devastating, but our faith gives us strength,” his mother explains. Despite the emotional strain, Ayyub’s love for art and toy cars continues to inspire the family.
Reflections:
The shortage of donors, especially within the coloured community, highlights the urgent need for increased awareness and donor registration. “We are determined to turn our pain into purpose by encouraging more people to become stem cell donors,” says Abu-Taalib’s mother.
The family remains committed to providing Abu-Taalib and Ayyub with the best quality of life, surrounded by love and support.
Register today at https://www.dkms-africa.org/register-now.
For more information, contact DKMS Africa on 0800 12 10 82.